# What are my rights over my child's health data?

Canonical: https://pinnacleblooms.org/ask/what-are-my-rights-over-my-child-s-health-data
Publisher: Pinnacle Blooms Network / Bharath Healthcare Laboratories Private Limited

As a parent or guardian in India, you have the right to be informed about, consent to, access, correct, limit the sharing of, and request deletion of your child's health data. Under the DPDP Act 2023, children's data needs verifiable parental consent. Reputable providers collect only what is needed and never share without your permission.

*You are your child's first guardian — and that includes guarding their health information.*

## In short
As a parent or legal guardian in India, you hold the right to know what health data is collected about your child, why it is collected, who can see it, and to ask for access, correction or deletion. Reputable developmental-care providers should collect only what is needed, keep it secure, and never share it without your informed consent — except where the law requires it. You can withdraw consent at any time.

## Your rights, in plain terms
Under India's data-protection framework (the Digital Personal Data Protection Act, 2023), a child's data carries special protection, and **verifiable parental consent** is required before it is processed.

In practice you have the right to:
- **Be informed** — what data is gathered (assessment notes, therapy progress, recordings) and the purpose for each.
- **Give and withdraw consent** — consent should be specific, freely given and reversible; withdrawing it should be as easy as giving it.
- **Access and correct** — see your child's records and have errors fixed.
- **Limit sharing** — your child's data should not be sold, used for targeted advertising, or shared with third parties without your clear permission.
- **Erasure** — request deletion when data is no longer needed for care or legal reasons.
- **Security** — expect data to be stored safely with restricted, role-based access.

Good questions to ask any provider: *Who can see my child's records? How long are they kept? Can I get a copy? How do I withdraw consent?* A trustworthy team will answer all of these without hesitation.

## The Pinnacle way
At Pinnacle Blooms Network, your child's data exists to serve your child's progress — nothing else. Records that inform a clinical [AbilityScore®](/ask/what-is-the-abilityscore-and-how-is-it-calculated) and any diagnosis are formed **only at a Pinnacle Blooms Network centre, under qualified clinician care**, with your informed parental consent governing every step. As a CDSCO Class B SaMD operator serving 4.95 lakh+ families, we treat your privacy as infrastructure, not an afterthought. You can begin your child's [developmental journey](/) on your terms, and our [assessment process](https://www.pinnacleblooms.org/enroll-autism-speech-aba-therapies-india) always starts with your consent.

## Trusted sources
WHO guidance on health information and the rights of the child; India's Digital Personal Data Protection Act, 2023, which sets special safeguards and verifiable parental-consent requirements for children's data. Always read a provider's privacy notice before sharing information.

**Next step —** Have questions about how your child's data is handled? [Book a consultation](https://www.pinnacleblooms.org/enroll-autism-speech-aba-therapies-india) and ask us directly before you share anything.

This is general information, not a diagnosis — individual assessment and diagnosis require an appropriately qualified healthcare professional.

## Sources
- WHO — health information and rights of the child: https://www.who.int
- HealthyChildren.org (AAP) — parent guidance on health records: https://www.healthychildren.org

## Connected topics and perspectives
- Parent: https://pinnacleblooms.org/ask/lens/stakeholder/parent
- Support: https://pinnacleblooms.org/ask/lens/intent/support
- Screen: https://pinnacleblooms.org/ask/lens/lifecycle/screen
- Book Assessment: https://pinnacleblooms.org/ask/lens/route/book-assessment
- Family Empowerment: https://pinnacleblooms.org/ask/lens/empowerment/family_empowerment

## Related question paths

### Explore therapy & support
- How does the DPDP Act protect my child's information?: https://pinnacleblooms.org/ask/how-does-the-dpdp-act-protect-my-child-s-information
- What data-privacy rules apply to children's health data in India?: https://pinnacleblooms.org/ask/what-data-privacy-rules-apply-to-children-s-health-data-in-india
- Can I ask for my child's data to be deleted?: https://pinnacleblooms.org/ask/can-i-ask-for-my-child-s-data-to-be-deleted
- How is my consent for data use taken?: https://pinnacleblooms.org/ask/how-is-my-consent-for-data-use-taken