{"h1":"AbilityScore 100–200 with Childhood Epilepsy: what to do next","faq":[{"a":"No. The band is a structured snapshot of where your child's skills sit today, measured against their own baseline — not a diagnosis and not a comparison to other children. Only a qualified clinician at a Pinnacle centre can interpret it and tell you what, if anything, it means for your child.","q":"Does an AbilityScore of 100–200 mean my child has a developmental delay?"},{"a":"Seizure diagnosis and control always come first and sit with your paediatric neurologist. Therapy works alongside medical care, not instead of it — never pause or change anti-seizure medication for therapy. Bring your neurologist's notes to your Pinnacle clinician review so the plan is coordinated.","q":"Should we start therapy before seeing the neurologist?"},{"a":"Yes, when there are developmental or learning areas to support. With seizures well managed, targeted speech, occupational or behavioural therapy can help your child build skills. The AbilityScore baseline helps the clinician focus on the right domains at the right intensity.","q":"Can therapy help a child with epilepsy?"}],"lang":"en","slug":"my-child-with-childhood-epilepsy-has-an-abilityscore-of-100-200-what-should-we-do-next","title":"AbilityScore 100–200 with Childhood Epilepsy: what to do next","entity":{"key":"epilepsy","kind":"condition","name":"Childhood Epilepsy","slug":null},"lenses":[{"kind":"stakeholder","label":"Parent","value":"parent"},{"kind":"domain","label":"Context","value":"context"},{"kind":"intent","label":"Support","value":"support"},{"kind":"lifecycle","label":"Measure","value":"measure"},{"kind":"route","label":"Book-Assessment","value":"book-assessment"},{"kind":"score_band","label":"As 100 200","value":"as_100_200"},{"kind":"empowerment","label":"Early Clarity","value":"early_clarity"}],"parent":{"key":"conditions","label":"Conditions"},"related":[{"lang":"en","slug":"my-child-with-childhood-epilepsy-has-an-abilityscore-of-200-300-what-should-we-do-next","title":"AbilityScore 200–300 with Childhood Epilepsy: What to Do Next"},{"lang":"en","slug":"my-child-with-childhood-epilepsy-has-an-abilityscore-of-600-700-what-should-we-do-next","title":"AbilityScore 600–700 with Childhood Epilepsy: what to do next"},{"lang":"en","slug":"my-child-with-childhood-epilepsy-has-an-abilityscore-of-300-400-what-should-we-do-next","title":"AbilityScore 300–400 with Childhood Epilepsy: Next Steps"},{"lang":"en","slug":"my-child-with-childhood-epilepsy-has-an-abilityscore-of-500-600-what-should-we-do-next","title":"Childhood Epilepsy & AbilityScore 500–600 — What To Do Next"},{"lang":"en","slug":"my-child-with-childhood-epilepsy-has-an-abilityscore-of-400-500-what-should-we-do-next","title":"AbilityScore 400–500 with Childhood Epilepsy: what to do next"},{"lang":"en","slug":"my-child-with-childhood-epilepsy-has-an-abilityscore-of-900-1000-what-should-we-do-next","title":"Childhood Epilepsy: Next Steps at a 900–1000 AbilityScore"}],"summary":"An AbilityScore of 100–200 is your child's own developmental baseline, not a verdict. With epilepsy, keep your paediatric neurologist central for seizure control, then use a Pinnacle clinician review to turn the band into a coordinated, individualised therapy plan.","answer_md":"*An AbilityScore in the 100–200 band is a starting point, not a verdict — and with epilepsy, the order of your next steps matters most.*\n\n## In short\nWith Childhood Epilepsy, the first priority is always **medical**: a paediatric neurologist must lead seizure diagnosis and control before and alongside any developmental therapy. An [AbilityScore®](/ask/what-is-the-abilityscore-and-how-is-it-calculated) in the 100–200 band simply describes where your child's developmental skills sit *today* — it is your child's own baseline, not a score to compare against other children. The next step is a clinician review at a Pinnacle centre to turn that baseline into a clear, individualised plan that works in step with your neurologist.\n\n## What this band means for your next steps\nEpilepsy (ICD-11 **8A6Z**) is a medical condition first. Many children with well-controlled epilepsy develop beautifully; some experience developmental or learning differences that benefit from targeted support. Your AbilityScore band gives the clinical team a structured snapshot of communication, learning, motor and daily-living skills so therapy can be precise rather than guessed.\n\n- **Keep neurology central** — seizure control, medication review and any safety concerns sit with your paediatric neurologist. Never pause or change anti-seizure medication for therapy.\n- **Flag any regression** — if your child loses skills they once had, or seizures change in pattern, tell your neurologist promptly. This is medical, not therapy-first.\n- **Use the baseline to plan** — the band helps your Pinnacle clinician decide which domains (speech, occupational, behavioural) to prioritise, and at what intensity.\n\n## The Pinnacle way\nA clinical [AbilityScore®](/ask/what-is-the-abilityscore-and-how-is-it-calculated) and any diagnosis are formed only at a Pinnacle Blooms Network centre, under qualified clinician care — never from an online band alone. Across 70+ centres in 4 states, 700+ therapists work alongside your medical team, re-measuring against your child's *own* baseline so progress is visible, not guessed. Explore how [therapy support](/) is built around each child, and how [speech therapy](/speech-therapy) can help if communication is an area of focus.\n\n## Trusted sources\nWHO ICD-11 (8A6Z, epilepsy); guidance from the American Academy of Pediatrics on developmental monitoring in children with chronic conditions; NICE epilepsy care principles. Always follow your treating neurologist's medical advice first.\n\n**Next step —** Bring your neurologist's notes and book a clinician review at your nearest Pinnacle centre so this AbilityScore band becomes a clear, coordinated plan. [Book an assessment](/enroll).\n\nThis is general information, not a diagnosis — individual assessment and diagnosis require an appropriately qualified healthcare professional.","canonical":"https://pinnacleblooms.org/ask/my-child-with-childhood-epilepsy-has-an-abilityscore-of-100-200-what-should-we-do-next","editorial":{"reviewed_at":"2026-06-11T20:12:18.613642+00:00","reviewed_by":null,"developed_by":"SETU Consortium · Pinnacle Blooms Network"},"alternates":[{"href":"https://pinnacleblooms.org/ask/my-child-with-childhood-epilepsy-has-an-abilityscore-of-100-200-what-should-we-do-next","lang":"en","indexable":true},{"href":"https://pinnacleblooms.org/ask/my-child-with-childhood-epilepsy-has-an-abilityscore-of-100-200-what-should-we-do-next-te","lang":"te","indexable":true}],"dimensions":[{"key":"conditions","label":"Conditions"}],"meta_title":"Epilepsy & AbilityScore 100–200: Next Steps","meta_robots":"index, follow, max-image-preview:large","everyday_tip":"Keep a simple daily diary noting seizures, sleep, mood and any new skills or words. It helps both your neurologist and your Pinnacle clinician see the real picture between visits.","published_at":"2026-06-10T10:36:00.237648+00:00","reading_paths":[{"key":"understand","items":[{"lang":"en","slug":"how-does-childhood-epilepsy-affect-a-child-s-daily-life","title":"How Childhood Epilepsy Affects a Child's Daily Life","reason":"Same topic"},{"lang":"en","slug":"is-childhood-epilepsy-considered-a-disability","title":"Is Childhood Epilepsy Considered a Disability?","reason":"Same topic"},{"lang":"en","slug":"is-childhood-epilepsy-genetic-or-hereditary","title":"Is Childhood Epilepsy Genetic or Hereditary?","reason":"Same topic"},{"lang":"en","slug":"what-are-common-myths-about-childhood-epilepsy","title":"What are common myths about Childhood Epilepsy?","reason":"Same topic"},{"lang":"en","slug":"what-are-the-types-or-levels-of-childhood-epilepsy","title":"What are the types or levels of Childhood Epilepsy?","reason":"Same 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