{"h1":"How your consent for data use is taken","faq":[{"a":"As the parent or legal guardian, you give consent on your child's behalf. We explain everything to you in plain language before any information is collected or used.","q":"Who gives consent for my child's data?"},{"a":"Yes. Consent is reversible — you can review, correct, or withdraw it at any time by contacting your centre, and your child's therapy continues regardless.","q":"Can I withdraw my consent later?"},{"a":"No. Any use beyond direct care, such as contributing de-identified information to research, is asked for separately and is entirely optional. Declining never affects your child's therapy.","q":"Will saying no to research affect my child's care?"}],"lang":"en","slug":"how-is-my-consent-for-data-use-taken","title":"How is my consent for data use taken?","entity":{"key":"topic-privacy","kind":"cross_cutting","name":"Privacy","slug":null},"lenses":[{"kind":"stakeholder","label":"Parent","value":"parent"},{"kind":"intent","label":"Support","value":"support"},{"kind":"lifecycle","label":"Screen","value":"screen"},{"kind":"route","label":"Book-Assessment","value":"book-assessment"},{"kind":"empowerment","label":"Family Empowerment","value":"family_empowerment"}],"parent":null,"related":[{"lang":"en","slug":"what-are-my-rights-over-my-child-s-health-data","title":"What are my rights over my child's health data?"},{"lang":"en","slug":"what-information-do-you-collect-about-my-child","title":"What information do you collect about my child?"},{"lang":"en","slug":"how-is-my-child-s-personal-data-protected","title":"How is my child's personal data protected?"},{"lang":"en","slug":"do-you-share-my-child-s-data-with-anyone","title":"Do you share my child's data with anyone?"},{"lang":"en","slug":"can-i-ask-for-my-child-s-data-to-be-deleted","title":"Can I ask for my child's data to be deleted?"},{"lang":"en","slug":"is-my-child-s-developmental-data-safe","title":"Is my child's developmental data safe?"}],"summary":"Your consent for data use is taken clearly and in plain language, only after you understand what is collected and why. It is specific, freely given by you as the parent or guardian, and you can withdraw it at any time without affecting your child's care. Anything beyond direct care, such as research, is asked for separately and is always optional.","answer_md":"*You should always know exactly what you're agreeing to — and be able to change your mind. That's the heart of how we take consent.*\n\n## In short\nYour consent is taken **clearly, in plain language, and only after you understand what you're agreeing to** — never buried in fine print. Before any of your family's information is collected or used, we explain what we gather, why, who sees it, and how long we keep it. Consent is **specific, freely given, and reversible** — you can withdraw it at any time, and care continues. For a child, consent is given by you as the parent or legal guardian.\n\n## How consent works at Pinnacle\nWe ask for your agreement at clear, separate moments rather than in one all-or-nothing tick-box:\n\n- **At enrolment** — for the information needed to assess and support your child (developmental history, assessment records, therapy notes).\n- **Layered explanation** — you're told *what* is collected, *why* it helps your child's plan, and *who within the care team* can see it, in language designed to be understood, not skimmed.\n- **Separate, optional consents** — anything beyond direct care (for example, contributing de-identified information to research) is asked for **on its own**, and saying no never affects your child's therapy.\n- **You stay in control** — you can review, correct, or **withdraw consent** at any time by contacting your centre, and we confirm what that means for your data.\n\nThis approach reflects accountable, consent-first data practice and India's data-protection expectations for handling a child's information through a parent or guardian.\n\n## The Pinnacle way\nA clinical [AbilityScore®](/ask/what-is-the-abilityscore-and-how-is-it-calculated) and any diagnosis are formed only at a Pinnacle Blooms Network centre, under qualified clinician care — never from an online form. The same care we bring to your child's development, we bring to your family's privacy: clear consent, secure handling, and your right to ask questions any time. Learn more about [how we work](/) or speak with a [centre near you](/centres).\n\n## Trusted sources\nWHO guidance on the ethical handling of health information and the rights of children and families; principles of informed, specific and revocable consent in health data practice.\n\n**Next step —** Have a question about your family's data, or ready to begin? [Connect with a Pinnacle centre](/centres) and we'll walk you through it.\n\nThis is general information, not a diagnosis — individual assessment and diagnosis require an appropriately qualified healthcare professional.","canonical":"https://pinnacleblooms.org/ask/how-is-my-consent-for-data-use-taken","editorial":{"reviewed_at":"2026-06-11T20:12:18.613642+00:00","reviewed_by":null,"developed_by":"SETU Consortium · Pinnacle Blooms Network"},"alternates":[{"href":"https://pinnacleblooms.org/ask/how-is-my-consent-for-data-use-taken","lang":"en","indexable":true}],"dimensions":[],"meta_title":"How Is My Consent for Data Use Taken?","meta_robots":"index, follow, max-image-preview:large","everyday_tip":"Keep a note of what you've consented to and the date. If anything feels unclear, ask your centre to explain it again — a good provider will never make you feel rushed.","published_at":"2026-06-11T02:42:00.094154+00:00","reading_paths":[{"key":"therapy","items":[{"lang":"en","slug":"can-i-ask-for-my-child-s-data-to-be-deleted","title":"Can I ask for my child's data to be deleted?","reason":"Linked from this answer"},{"lang":"en","slug":"what-are-my-rights-over-my-child-s-health-data","title":"What are my rights over my child's health data?","reason":"Linked from this answer"},{"lang":"en","slug":"how-does-the-dpdp-act-protect-my-child-s-information","title":"How does the DPDP Act protect my child's information?","reason":"Same topic"}],"label":"Explore therapy & support","total":3}],"what_to_watch":"When you sign up for any service, look for consent that is specific (not one blanket tick-box), explained in plain language, and clearly reversible. You should always be able to find who to contact to withdraw it.","authority_links":[{"url":"https://www.who.int/","label":"WHO — ethical handling of health information"},{"url":"https://www.healthychildren.org/","label":"AAP HealthyChildren — family health information"}],"last_reviewed_at":"2026-06-11T02:42:00.094154+00:00","meta_description":"Your consent at Pinnacle is taken in plain language, only after you understand what's collected and why — specific, parent-given, and reversible any time.","related_materials":[],"related_techniques":[]}